HUBUNGAN ANTARA HARAPAN DAN STRES ORANG TUA YANG MEMILIKI ANAK DENGAN AUTISME
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Abstract
Autisme merupakan gangguan perkembangan yang ditandai dengan gangguan sosial perilaku dan minat yang terbatas. Setiap orang tua yang mempunyai anak, memiliki harapan yang indah dan baik untuk anaknya. Diagnosis autisme akan kondisi anak menyebabkan stres pada orang tua. Stres ini menyebabkan harapan orang tua berubah. Penelitian ini bertujuan untuk mencari korelasi antara harapan dan stres orang tua yang memiliki anak dengan autisme. Karakteristik partisipan ini adalah orang tua yang memiliki anak berusia 3-16 tahun. Anak sudah didiagnosa autisme oleh dokter atau psikolog ataupun psikiater. Partisipan yang mengisi alat ukur penelitian ini sebanyak 69 orang. Alat ukur yang digunakan untuk mengukur harapan adalah adult dispotitional hope scale (ADHS), sementara alat ukur yang digunakan untuk mengukur stres orang tua adalah parental stress scale (PSS). Metode penelitian yang digunakan adalah metode penelitian kuantitatif korelasional dengan teknik pengambilan sampel yaitu purposive sampling. Analisis data menggunakan uji korelasi dengan perangkat lunak SPSS versi ke 23. Uji korelasi yang dilakukan menunjukkan korelasi negatif yang lemah antara harapan dan stres orang tua (r = -.244, n = 69, p = .043). Hal ini menunjukkan jika stres orang tua tinggi, maka harapan itu rendah. Sebaliknya jika harapan tinggi, stres orang tua rendah. Orang tua diharapkan untuk membuat harapan yang realistis serta mengelola stres yang dapat memengaruhi kondisi psikologisnya.
Autism is a developmental disorder characterized by impaired social behavior and limited interests. Every parent with children, hopes for the best for their children. If their children are diagnosed with autism, this will cause stress in parents. This stress causes the hope of parents to change. This study aims to find a correlation between hope and stress of parents who have children with autism. The characteristics of the participants are parents who have children aged 3-16 years. The child has been diagnosed with autism by a doctor, or psychologist, or psychiatrist. Participants who filled out the measurement tools of this study were 69 people. The measuring instrument used to measure expectations is the adult dispotitional hope scale (ADHS), while the measuring instrument used to measure parental stress is the parental stress scale (PSS). The research method used is quantitative correlational research method with purposive sampling technique. Data analysis was a correlation test using SPSS software version 23. The correlation test conducted showed a weak negative correlation between expectations and stress of parents (r = -.244, n = 69, p = .043). This shows that if parental stress is high, then hope is low. Conversely, if hope is high, parental stress is low. Parents are expected to have realistic hope and manage stress that can affect their psychological condition.
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References
Badan Pusat Statistik. (2016). Profil penduduk Indonesia hasil SUPAS 2015. Jakarta: Author. Diakses dari https://media.neliti.com/media/publications/48298-ID-profil-penduduk-indonesia-hasil-supas-2015.pdf pada tanggal 10 September 2018.
Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12(3), 463–472. https://doi.org/10.1177/0265407595123009
Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153–163. https://doi.org/10.3109/01612840.2015.1116030
Bonnice, S. 2004. The hidden child: Youth with autism (Ronawan, M. A. & Setiadji, I., Trans.). Broomall, Pennsylvania: Mason Crest Publishers.
Center for Disease Control and Prevention . (2018). Autism data visualization tool. Diunduh dari https://www.cdc.gov/ncbddd/autism/data/index.html pada tanggal 13 April 2019.
Chu, S. Y., Mohd Normal, S. N. S. A. binti, McConnell, G. E., Tan, J. S., & Joginder Singh, S. K. D. (2018). Challenges faced by parents of children with autism spectrum disorder in Malaysia. Speech, Language and Hearing, 1–11. https://doi.org/10.1080/2050571X.2018.1548678
Dahnur, H. (2018, Mei 3). Sebelum mati saya ingin melihat anak autis bisa mandiri. Kompas Online. Diakses dari https://regional.kompas.com pada tanggal 24 Maret 2019.
DePape, A. M., & Lindsay, S. (2015). Parents’ experiences of caring for a child with autism spectrum disorder. Qualitative Health Research, 25(4), 569–583. https://doi.org/10.1177/1049732314552455
Faso, D. J., Neal-Beevers, A. R., & Carlson, C. L. (2013). Vicarious futurity, hope, and well-being in parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 7(2), 288–297. https://doi.org/10.1016/j.rasd.2012.08.014
Fernández, M. C., & Arcia, E. (2004). Disruptive Behaviors and Maternal Responsibility: A Complex Portrait of Stigma, Self-Blame, and Other Reactions. Hispanic Journal of Behavioral Sciences, 26(3), 356–372.doi:10.1177/0739986304267208
Handayani, I. (2016, April 24). Tangani autisme sejak dini. Investor Daily. Diakses dari http://id.beritasatu.com pada tanggal 29 September 2018.
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629-42. Doi:http://dx.doi.org/10.1007/s10803-012-1604-y
Kausar, S., Jevne, R. F., & Sobsey, D. (2003). Hope in families of children with developmental disabilities. Journal on Developmental Disabilities, 10(1), 35–46.
Klinger, L.G., Dawson, G., Barnes, K., & Crisler, M. (2014). Autism spectrum disorder. In E. J. Mash & R. A. Barkley (Ed.), Child psychopathology (3rd ed.) (pp 531-572). New York, United States: Guilford Publications
Lee, C. S., Park, S. U., & Hwang, Y. K. (2016). The structural relationship between mother’s parenting stress and child’s well-being: The mediating effects of mother’s growth mindset and hope. Indian Journal of Science and Technology, 9(36). https://doi.org/10.17485/ijst/2016/v9i36/102702
Louie, A. D., Cromer, L. D., & Berry, J. O. (2017). Assessing parenting stress: Review of the use and interpretation of the parental stress scale. The Family Journal, 25(4), 359–367. https://doi.org/10.1177/1066480717731347
Mawardi, I. & Dewi, J.R. (2017, Desember 7). Fenomena orang gila: Sebagian masyarakat Indonesia masih menganggap pengidap autisme sama dengan orang gila. Tribun Jabar. Diunduh dari http://jabar.tribunnews.com pada tanggal 15 September 2018.
Mulligan, J., MacCulloch, R., Good, B., & Nicholas, D. B. (2012). Transparency, hope, and empowerment: A model for partnering with parents of a child with autism spectrum disorder at diagnosis and beyond. Social Work in Mental Health, 10(4), 311–330. https://doi.org/10.1080/15332985.2012.664487
Neff, K. D., & Faso, D. J. (2015). Self-compassion and well-being in parents of children with autism. Mindfulness, 6(4), 938–947. https://doi.org/10.1007/s12671-014-0359-2
Shogren, K.A., Niemiec, R.M., Tomasulo,D. & Khamsi, S. (2017). Character strength. In Shogren, K. A., Wehmeyer, M. L., & Singh, N. N. (Eds.) Handbook of Positive Psychology in Intellectual and Developmental Disabilities. Cham, Switzerland: Springer International Publishing. https://doi.org/10.1007/978-3-319-59066-0
Snyder, C. R., Harris, C., Anderson, J. R., Holleran, S. A., Irving, L. M., & Sigmon, S. X. (1991). The will and the ways: Development and validation of an individual-differences measure of hope. Journal of Personality and Social Psychology, 60(4), 570–585.
Tamba, A. & Triyudha, A. (2018, April 2). Tren penderita autisme meningkat. Harian Nasional. Diunduh dari http://www.harnas.co pada tanggal 8 September 2018.
Wignyosumarto S., Mukhlas M., Shirataki S. Epidemiological and clinical study of autistic children in Yogyakarta, Indonesia. Kobe J Med Sci. 1992 Feb;38(1) 1-19.
Woodman, A. C. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family Relations, 63(1), 39-54.
Wong, M. G., & Heriot, S. A. (2006). Vicarious Futurity in Autism and Childhood Dementia. Journal of Autism and Developmental Disorders, 37(10), 1833–1841.doi:10.1007/s10803-006-0317-5