THE RELATIONSHIP OF CAREGIVING BURDEN WITH PSYCHOLOGICAL WELL-BEING OF MOTHERS OF AUTOIMMUNE SURVIVORS WITH FAMILY SUPPORT AS A MODERATOR
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Abstract
This study aims to determine the relationship between caregiving burden and psychological well-being in mothers caring for children with autoimmune disease, and to determine the role of family support as a moderator in this relationship. The increasing prevalence of autoimmune conditions in Indonesia, especially after COVID-19, has significant implications for the psychological well-being of informal caregivers, especially mothers. This study used a quantitative method by conducting an online survey. Data were collected in Indonesia from 101 mothers aged 25 years and over who acted as informal caregivers for their children who had or had autoimmune diseases at the time of the study. The 18-item Ryff Psychological Well-being Scale (RPWBS) was used to measure psychological well-being, the 12-item Zarit Burden Interview (ZBI) to measure perceived caregiver burden, and the 4-item family dimension of the Multidimensional Scale of Perceived Social Support (MSPSS) to measure family support. The findings of this study were that there was a negative and significant relationship between caregiving burden and psychological well-being in mothers of children with autoimmune disease. However, family support did not play a moderating role in this relationship. Among the mothers, 48.5% were aged 25-39 years, 51.5% were aged 40-60 years. The mean score of mother's perceived caregiving burden was low (1.20±0.58) and the mean score of mother's psychological well-being was high (5.46±1.47). Specifically, lower caregiving burden was associated with better psychological well-being.
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References
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